Thankful for the Craziness!!

Mmmm, it's Thursday morning at 10:10 am. I'm a late starter today. Gotta say first thing that I am thankful for the nap I got to take this morning.

I slept very well last night, but my baby girl didn't. She got her new air overlay yesterday for her mattress to prevent pressure sores. When the guy set it up, he said we had to leave the blower on at all times. We couldn't turn it off at all, not even for her to get out of bed. Guess what? It's off. And the mattress is crumpled up on the floor at the foot of her bed. SHE HATED IT!!!!!

Because she has no feeling in her legs, the mattress pushed her legs up into her "space" while her butt sunk into the mattress. She couldn't move, couldn't get comfortable, and couldn't sleep all night. I thought it awful funny when I posted a comment on her Facebook this morning at 5:50 that she commented right back. I told Rob, I can't believe she woke up just to comment. Then she called me into her room and I saw the look of desperation all over her face. She was sleep deprived, and she was NOT happy! And when Sarah's not happy........

Needless to say, the mattress that I was so thankful yesterday, um...well... not so much today!!!! We also got an air cushion for her wheelchair that we haven't tried out yet. This should be interesting to say the least!

Anyhoo, all this was just too much to deal with first thing this morning, so a nap was in order, and it was a great one!! Don't expect to see Sarah on Facebook today, I'm thinken she's gonna be asleep for the next 16 hours, haha!!!!

Ok, what is this blog called...I forget. Oh yea, Thankful Thursdays. (Why is it I always have to complain before I'm thankful?) Let's move on:

Even though I've been stuck at home for a week now, it's been kinda good. I've gotten tons of jeans listed to eBay. It's probably been about 3 months since I've really taken the time to list like that. There's plenty more after that, but at least it's a start!!!

I'm thankful for Bobby, who will WRITE a grocery list AND go buy the groceries for me, like he's gone to do right now! He's awesome!!! And get this....sometimes he will even clean out the fridge and snack cabinet and rearrange them for me!! He loves to throw away outdated stuff!!! That's great, cause if it were me, we'd still be eating it a year from now!!!!

I'm thankful for my husband, who makes every night special by reading devotions with me and spending quiet time to reconnect after our crazy days!!!

I'm thankful that I am able to stay home and take care of my family, even though it would be easier on him if I worked. If I were working right now, I'd have to try to manage all of these doctor appointments, nurse visits, and everything else while trying to keep my job. I've done it before, and it's not easy. I have so much respect for women who have to work while taking care of a child with a disability.

I'm thankful I just found out my brother is coming over today on his way back to NC. I was afraid I wouldn't get to see them this time! Gonna get some "3 nieces" time!!!!

I'm thankful Rob is getting off work early today!!!!!!!!!!!!!!

I'm thankful they changed Johnny's medicine, and are going to start him on steroid IV's again today or tomorrow. He's really been having a hard time, and we're praying these two changes will make a difference!!

I'm thankful for Dreama, who is PRESSURING me on Facebook to finish this blog, so I guess I'm done :-D

Have a wonderful, blessed day. Remember to be Thankful for the little things as well as the big....

In Him our hearts rejoice, for we trust in His holy name. Psalm 33:21

Lord, you know the desires of our heart. You know our secret fears too. But we acknowledge Your unfailing promises and steadfast love. Thank You for being our rock!!!!